Liang Ruoxu did not understand clinical medicine, but he also realized the seriousness of the problem.

"It should be a rare disease, right? With the medical level of Huaxia, can it be cured?"

"It's a rare disease, and it can be treated. ”

"That's good. Liang Ruoxu said: "Although the child is a little small, as long as it can be treated, the problem is not big." ”

"It can be cured, but it can't. ”

"What do you mean?"

"There are 700,000 drugs for the treatment of SMA, even if the symptoms are the mildest, it takes as few as four to be cured. Lin Yi looked at Liang Ruoxu, "How do you let them be treated?"

Liang Ruo was stunned, and his expression fell silent.

When they met just now, the couple introduced their identities.

They came from the county seat to Zhonghai to work.

According to the current standard, the two of them work hard, without eating or drinking, and they can earn 200,000 yuan a year, which is already the limit.

If you don't eat or drink for three and a half years, and you are still trying to make money, you can play one.

If it is treated with the mildest symptoms, it will take at least 14 years.

Even if they can persevere, the child may not be able to persevere.

As Lin Yi said, this disease can be cured, but it can't be cured.

"If they were really diagnosed, would you choose to help them?" asked Liang Ruoxu.

"No, it won't. ”

Lin Yi shook his head, "I'm a human, not a god, in the whole of China, there is a disease that is even rarer than SMA, do I have to help one of them, even if I have such thoughts, I can't help it." ”

"I know what you mean. Liang Ruoxu said: "Do you want me to call up the capital and help them." ”

"Don't. Lin Yi looked at Liang Ruoxu and said:

"You are a magistrate, you have to know your position better than me, people sometimes, you must be cold-blooded, otherwise the world order will be chaotic. ”

About half an hour later, Sun Dawei walked in from outside.

"How's the situation?" Lin Yi asked.

"I only did a preliminary examination, I took the results, and several other directors, did a simple video consultation, and it was basically settled, it was SMA, spinal muscular atrophy. Sun Dawei said:

"Tomorrow, doctors from other departments will come, and then let them do a comprehensive examination, and they will be completely diagnosed. ”

"What are you going to do with this disease?"

Sun Dawei shrugged his shoulders, "I can't help, after the diagnosis is complete, I will let them go back, nusinersen sodium for the treatment of SMA costs 700,000 sticks, and it has not been included in the medical insurance, with their conditions, they must not be able to afford it, there is not much we can do, hey, poor child." ”

"Okay. Lin Yi says:

"Let's just do our best, there are many things that we can't do. ”

"Isn't it? Sun Dawei said: "Half a year ago, I just sent away one such patient, and now another one has come, and I can't treat it at all." ”

Lin Yi nodded, "Then deal with it in a regular way, I'll go first." ”

"Okay, come out and have a drink. ”

"Good. ”

Leaving the office, the two walked towards the parking lot.

"Why is this medicine so expensive?" Liang Ruoxu said:

"Is it the same as Pfizer, monopolizing the market?"

"It's true that they have a monopoly, but they're different from Pfizer in that they're completely two natures. Lin Yi says:

"Pfizer's ibulopin, there are many drugs of the same type on the market, but the effect is not as good as theirs, in addition, this is also a standing cardiovascular drug, which has to be taken every day, so the cost of research and development, apportioned to the majority of patients, is actually not much money, so at that time, I dared to blatantly bargain with them. ”

"But nusinersen sodium for the treatment of SMA is different, as far as I know, the time to develop this rare drug, on average, is about 13 years, how to take into account the capital factor, the cost can be as high as 1.8 billion US dollars, and most importantly, even if you put in, the cost of time and money, may not be successful. ”

"From the selection of targets to the screening of lead compounds, to the 123 phase of clinical optimization, and then to the final application for marketing, the final success rate is less than 4%, and any problem in any link will lead to all the investment falling short. ”

"And 13 years, 1.8 billion US dollars, just for the successful research of drugs, before this, there must be countless failures, and these failed products also have costs, which is why it is so expensive, and it is still a rare disease, and it is naturally expensive to sell. ”

Although Liang Ruoxu was a layman who had parachuted in, after listening to Lin Yi's explanation, he fully understood what was going on.

Pharmaceutical companies are not wrong, compared with a fresh life, the figure of 700,000 is not expensive, but this cold weight is not something that anyone can bear.

"There are still many rare diseases in the world, and the drugs to treat them are more expensive. ”

"Indeed, the same drug for the treatment of SMA, there is 15 million zogensma, and the original price of nusinersen sodium is 870,000, and now it has dropped to 700,000, which has been talked about a lot. Lin Yi says:

"In addition, the drug for the treatment of LPLD was sold for $1.21 million, the drug for UCD was $790,000, the drug for Pompe disease was $620,000, and the drug for hyperammonemia was $580,000......"

"There are countless rare diseases, and the cost of their treatment is astronomical for ordinary people, and we can't accuse pharmaceutical companies of being mercenary, that would be too selfish. ”

"Huh~~~" Liang Ruoxu took a deep breath, "But for us, this is always a problem." ”

"That's right. Lin Yi shrugged his shoulders with a calm expression, as if he was used to facing such things, and said:

"With my current financial resources, it's no problem to help one person, or even a hundred, but in the face of a huge population base, the number of people suffering from these rare diseases is not a small number, and I really can't afford to help. ”

"This thing, it seems, can only be done like this. ”

In fact, Liang Ruoxu and Lin Yi are facing the same problem.

They all have super individual abilities, and it's okay to help one or ten, but they can't help everyone.

Just like Lin Yi just said, everyone is a human being, not a god.

"That's the only way, just let this matter go for now, don't think about it. Lin Yila opened the door and said:

"I have other ones to leave beforehand, so I won't accompany you. ”

"I sold you such an important piece of information today, don't you want to express it?" Liang Ruoxu looked at Lin Yi and said.

"Go to my house another day, I'll cook for you, let's have a candlelit dinner by the pool, what do you think." ”

"Not very good. ”

"I'm telling you, ordinary people can't eat the food I cook, and you should cherish the opportunity given to you. ”

"You don't talk nonsense with me there, you just want to see me swim in a swimsuit!"