It's hard to cure!" Ruan Bin began. Urea cycle disorders are a group of inherited metabolic disorders characterized by high blood ammonia due to congenital enzyme defects.Urea cycle disorders can lead to diabetes mellitus, diabetic ketoacidosis, hyperglycemic hyperosmolar syndrome, hypoglycemia, gout. Due to the disorder of the blood-brain barrier, brain tissue is affected by the biochemical internal environment, and metabolic changes occur, resulting in brain dysfunction.

"The causes of urea cycle disorders are metabolic disorders and vigorous metabolism, etc., in the treatment of urea cycle disorders, the main methods are drug ammonia reduction, hemodialysis, etc., in addition to the diet of low protein diet, and this disease is particularly serious, its prognosis is poor, high mortality. ”

"To put it simply, urea cycle disorders are unable to excrete ammonia produced after protein decomposition, and the current treatment is mainly to limit protein intake and combine with drugs to lower blood ammonia to avoid an acute rise in blood ammonia. In other words, your child can only rely on medication to control the blood ammonia level!" Guo Hui also explained.

"Huh, can't it be cured?" the man's face changed drastically after hearing this!

How can it be so serious?

After hearing this, the woman also immediately cried out with a wow, it was so uncomfortable!

This result is difficult for them to accept.

"Wife, it's okay, there is a drug that can be controlled, there is a chance! We can't give up!" The man saw his wife crying and hurriedly comforted him.

"We have some bad news for you, the cost of treatment for your child may be high!" said the pediatric inpatient after a moment's thought.

"At present, the best drug for the treatment of this disease is glycerin phenylbutyrate (Ravicti), but this drug is very expensive, and it is a sky-high drug! The annual treatment cost is about 800,000 US dollars a year, which is more than 5 million RMB!"

"What? More than 5 million a year?" After listening to this, the post-90s couple suddenly felt that the world was spinning, and the woman almost didn't take a breath! The man was also stunned when he heard it!

"Of course, although this medicine has the best effect, the price is also the highest, and if you use some other drugs that are a little worse, it will probably cost more than one million a year. ”

"Not to mention more than 5 million! Even if it is more than 1 million a year, we can't afford it!" The man's face turned pale and his face became decadent.

How to treat more than one million yuan a year?

What kind of treatment do they get? His monthly salary is only 50,000 yuan! He is considered a senior white-collar worker, but in the face of sky-high drug costs, he simply cannot afford it!

The child is less than a month old, and what about the future? More than a million a year? Only the rich can afford it!

"This ...... We are also helpless, we really have no cure for this disease at present. Guo Hui said apologetically.

They also want to save people!

But, no way!

Looking at the desperate post-90s couple, Ruan Bin felt a lot of emotion in his heart!

He knows that encountering this rare disease and needing rare medicine to treat it is a huge burden, great pain, and great despair for any family!

As for this sky-high drug, there are really a lot of them in the world!

For example, Glybera, which is ranked first, specializes in the treatment of lipoprotein lipase deficiency genetic diseases, and the cost of a year is $1.21 million a year!

The second place is the one above!

The third is Spinraza, which treats spinal muscular atrophy and costs $750,000 a year, and the product is an out-and-out sky-high drug. Biogen Eddy has adopted a "ladder" price reduction measure, although the fee is $750,000 in the first year, and it can be halved in the second year. Spinraza is not only a sky-high drug, but also a blockbuster drug, with sales of $884 million in 2017.

In addition to the above, there are many sky-high drugs......

So a certain movie said, poor disease, no rule of law!

It sounds uncomfortable, but it's realistic!

Thinking of this, Ruan Bin suddenly thought of the cancer-curing drug he was researching! If he waited for his cancer-curing drug to come out, he felt that the price should not be too high! It could be affordable for most people, such as the price of 50,000 to 100,000 yuan. Even if you borrow money and sell iron, many families can afford it!

As for his abundant Chinese medicine, it sells for 300,000 yuan! This medicine is not to save lives, but to become beautiful, and the nature is different. So it doesn't matter if the price is a little higher.

"Do you want to go to the pediatric hospital first, or do you want to think about it again?" asked the pediatric hospitalist.

"I'll get in touch with my family first. The man's expression was a little wooden.

"Okay. ”

Seeing this, Ruan Bin sighed and walked out of Guo Hui's consultation room.

After returning to his consultation room, Ruan Bin turned on the system!

"System!"

System points: 47,000

To be honest, Ruan Bin is not short of money now!

At least there is no shortage of this little money!

Since he has encountered this kind of patient and this kind of family, he feels that he should help!

You can't help openly, you have to help secretly!

"System Mall!"

Search for drugs to treat urea cycle disorders.

More than a dozen appeared at once.

Most of them are like the ones above, which can only be controlled, not cured.

But fortunately, the system is very powerful, and there are three medicines in it that can be completely cured.

D-type urea cycle agent: 2,000,000 points (curable)

Urea Cycle Serum Type A: 2,100,000 points (curable)

......

He looked at the price, and it was acceptable.

"Recharge 2 million points to enter!"

Then Ruan Bin directly bought a bottle of D-type urea cycle potion!

He took it out and looked at it, and found that it could cure any kind of urea cycle disorder!

"Look at how much the production line costs. ”

He inquired curiously.

D-type urea cycle drug production line: 3 billion points.

"Shhh...... It's so expensive!" the corners of Ruan Bin's mouth twitched.

It seems that don't think about this drug production line, he doesn't have that much money.

And if this medicine is taken out rashly, it will definitely be done by someone with a heart, so he doesn't dare to do it at present.

If you can help, you can help!

In the end, the post-90s couple still chose to be hospitalized!

There's no way they can give up!

Although the child cannot be cured of this disease, although this disease can only be controlled and treated by medication.

But are they just giving up because of this sky-high drug?

He's their child!

It's only been a dozen days since I was born!

Can you bear to give up?

That's the meat that fell from my parents!

No one will be willing to watch him leave this wonderful world......

At about 5 o'clock in the morning, Ruan Bin walked over to the pediatric inpatient department to look at the child, and while the parents were not paying attention, he secretly gave the child medicine.

As for the final result, we will wait for the follow-up.

Three days later, the general manager of the pediatric hospital received news that the child's blood ammonia had returned to normal values!

Perhaps, this is an oolong!

In the end, the family was happily discharged from the hospital!