Chapter 191: Charity Gala
Shi Wenna's attention to Chen Andong is obviously not only because of Chen Andong's medical skills, but also because of deep meaning. However, this Shi Wenna is not an ordinary housewife, she speaks very skillfully, which makes Chen Andong feel that she is just having a family with him.
"I heard Xiao Yu say, in your family, your parents are doctors, so where do they work now?" Shi Wenna asked seemingly casually.
Chen Anton didn't care, and casually told the situation at home, "My parents opened a clinic in the town. ”
"Oh, that's nice. Working at home in a clinic gives me a lot more freedom to work than I do in a hospital. Shi Wenna glanced at Qiao Yu.
"Auntie, why are you asking Xiaodong so much. Judges? Qiao Yu was unhappy.
"Nonsense. Isn't my aunt very curious about Xiaodong? With such good medical skills, there must be a family inheritance. Naturally, Shi Wenna couldn't ask any more.
The charity gala is good, and the most popular thing is not the show, but the process of donating money. In the past, when there was a disaster, I would come to a disaster relief party and invite many big-name stars. In the end, the money raised by the party was not enough to cover the expenses of the party. So much so that the charity gala was later strictly managed. And the restrictions on charity performances are becoming more and more stringent. Artists participating in the charity performance are not eligible for an appearance fee.
In this charity gala held in Baigong City, all the participating artists are volunteer to perform the program. This charity gala was specially initiated by the Rare Disease Public Welfare Fund. Rare diseases are diseases that have a very low prevalence and are rare. The World Health Organization defines rare diseases as 0.65% of the total population. to 1%. There are 5,000 to 6,000 rare diseases that have been identified, accounting for about 10% of human diseases. About 80% of rare diseases are caused by genetic defects. Rare diseases occur in 50% of cases. Rare diseases are generally chronic and severe. It often affects multiple systems throughout the body. There are nearly 10 million patients with rare diseases in China.
For the vast majority of rare diseases, there is no effective treatment, and because patients with rare diseases were largely excluded from drug development 25 years ago, drugs for the treatment of rare diseases are called "orphan drugs". It usually takes an average of 10 years from the discovery of a new compound to the launch of a drug, the R&D cost can run into millions to hundreds of millions of dollars, and more than 90% of the R&D drugs end in failure. Even if the drug enters the phase III clinical trial, there is still a 30% chance of failure. In addition, due to the limited understanding of rare diseases, low diagnosis rate, high misdiagnosis rate, lack of reliable clinical endpoint indicators, limited level of doctors to diagnose and treat rare diseases, scattered patients, and difficult coordination of clinical trials, clinical trials of rare diseases are more complex than trials of other diseases. Therefore, without special incentives, no drug company is willing to invest in research into rare diseases. Due to the lack of attention from society, there are few researchers and institutions focusing on rare diseases. Animal models of rare diseases are associated with very limited cell lines.
The purpose of the charity gala was to raise money for the medical treatment of patients suffering from rare diseases and the development of drugs for the treatment of rare diseases.
Due to the nature of the party, it is completely different from the general party format. Chen Andong and Qiao Yu entered the party together. It's not so much a party scene as a party scene. All the guests and the performers sat in the lobby of a hotel. Most of the people who can participate in such a charity gala are people with heads and faces in Baigong City. Among them, there are also young people of the same age as Chen Andong.
Qiao Yu, who changed into a gorgeous performance costume, was even more eye-catching, dwarfing Chen Andong, who was wearing ordinary clothes on the side. Qiao Yu even regretted a little, he shouldn't have worn such a gorgeous performance costume. At this time, she preferred to wear extremely ordinary clothes and walk down the street with Chen Andong.
"Miss Joe. Hello, I am Wang Zheng, President of Daxiang Biotechnology Co., Ltd., and I am very happy to meet Miss Qiao here. I'm a big fan of Miss Joe myself. I don't think it's just about career success. What is more important is to have a kind heart to give back to the society. At this charity party, our company saw the donation of a sum of funds. It is used to save these patients who are suffering from diseases. As a biotechnology practitioner, I know more about these rare diseases than ordinary people...... "Wang Zheng is an outstanding young entrepreneur in Baigong City, who started his own business at a young age and founded Daxiang Biotechnology Co., Ltd. In five years, the company started from the initial one million funds, and has now developed into an enterprise with assets of more than 10 million and annual profits of more than 1 million.
"I admire your kindness very much." Qiao Yu knew that this person was coming to talk, but he couldn't refuse.
When Wang Zheng heard Qiao Yu say this, he was even more overjoyed: "Where, where." Miss Qiao worked tirelessly to participate in charity activities in Baigong City. This sentiment is worth learning from the entertainment industry. In my opinion, Miss Qiao is many times stronger than those so-called big stars who are not sick......"
"I'm sorry, but I'm going to go over and check for the show I'm going to perform that night." Qiao Yu interrupted Wang Zheng's words, and then reached out to hold Chen Andong's hand, "Xiaodong, you go with me." ”
Wang Zheng looked at Chen Andong who was holding hands with Qiao Yu meaningfully.
The host appeared on the stage, and as soon as he came to the stage, he said with a smile: "The disease is ruthless, but people are affectionate." The main purpose of our charity gala is to awaken people's concern for the people around us who are easily overlooked. Rare diseases are often referred to as 'orphan diseases'. Because only a very small number of people in the human race suffer from such diseases...... Next, I would like to introduce you to a person. This old man is 80 years old this year. But, she just told me that he wanted to live to be 100 years old. ”
Listening to the host say this, everyone felt strange. It's normal to be sick when you're in your seventies and eighties, but what's the connection with "orphan disease"? People in their eighties are constantly declining in their physical functions, and it is normal for them to be sick. I don't deny it, she may have something to be pitied, but is it really appropriate to use her to cheat tears?
The host didn't know if he was deliberately trying to whet the appetite of the audience, or what was going on. In short, she deliberately paused for a long time before she continued: "She wants to continue to live, not because she is afraid of death. She told me that she had lived to be 80 years old, and that she had lived enough, but her daughter had not lived enough. Her daughter's name is Xiao Hong, and she is a ALS patient. Like other people with ALS, they need to have their esophagus cut or gastrostomy to stay alive by nutrient infusions, and their lung muscles atrophy and stop breathing. ALS patients almost always have to be conscious to meet the moment when their physical strength finally disappears. Xiao Hong is the youngest daughter of the old man, who was born when the old man was forty years old, and is only forty years old this year. The old man often stared at his daughter without saying a word. The two of them would look at each other for a long time, and then they would either laugh or cry. The old man said that she has been feeling more and more physically poor recently, but she does not dare to die. Because, if she is gone, what will Xiao Hong do? (To be continued......)