When night falls, the city is lit up and the city is lit up with neon lights and bright lights.

Shop No. 32 Mingqian Street, Zhongshan Real Estate.

Xiao Chen stood at the door, leaned out and looked out, turned his head, and shouted to the person in the room: "Brother Lei, it's not early, you go first!" My sister-in-law is still waiting for you at home! ”

"Don't worry, wait for me to take a look at the listings."

The man in the corner heard the voice and slowly raised his head, his voice was not hurried, it was very gentle, and there was a faint trace of sadness between his eyebrows.

"Brother Lei, I know you are anxious now, but now your body is the most important, if you collapse, what will happen to your sister-in-law and children?"

Xiao Chen walked up to his side quickly, grabbed his armpits, and tried in vain to pull him up.

His movements were indeed very steady, raising his hand to hold Xiao Chen's hands, and pressing down steadily, his body did not leave the chair at all.

"Xiao Chen, I know what to do."

The gentle voice sounded again, but the words were very firm.

Staring at his serious eyes, Xiao Chen was defeated, and finally stopped trying to pull him.

"Brother Lei, take a break, you haven't rested every day for a month, don't let people worry, okay?"

"Xiao Chen, I know my own affairs, so don't worry about it." After a pause, a seemingly nonexistent smile appeared on the corner of his mouth, and then he said, "When did your brother Lei disappoint you!" ”

"Xiaojie has been away from work for so long, why don't you hurry up?! I'm not afraid to go back and my girlfriend gets angry! ”

The more he spoke, the more angry his voice became, and his expression softened.

Seeing this, Xiao Chen relaxed instead. His brother Lei finally has the appearance of the past.

"Okay, okay! I'll pack up my things and go, you can go with you, just when I rub a car? ”

Xiao Chen took the opportunity to laugh, while not forgetting to find a way to stir him up.

"Hey, that's really unfortunate, my car was just hit yesterday and sent for repairs." When it comes to this topic, he is not angry, but tells the story of yesterday like a story, half-talking and half-laughing.

"Then you're really enough.,Forget it when you meet a difficult customer.,Went out and was hit by a female driver.,Recently... Recent... Hey, it's okay! As long as the person is okay! ”

Xiao Chen found that something was not suitable as he spoke, as if someone had suddenly stuck his neck, and suddenly changed the topic stiffly.

"Yes, I've really had trouble lately, and I don't know if I'm going to go to a master's place to see, and find a way to transfer it..."

Obviously, Xiao Chen's blunt change of words doesn't work very well.

“... Hey, hey..."Xiao Chen touched the back of his head awkwardly, wanting to squeeze out a sentence or two, but he usually faced customers with exquisite faces, and he didn't know what to say for a while.

"Xiao Chen, you go back first!" He patted Xiao Chen on the shoulder, picked up his mobile phone and raised it, before he said again, "It's just right, I'm still early to contact this homeowner." ”

Pursing his lips a little embarrassedly, Xiao Chen hesitated to move his steps, wanting to say something more.

"Hey... Hello, is this Miss Chen? ...”

Seeing Brother Lei, who had already answered the phone and greeted him, Xiao Chen had no choice but to give up, pack up his things, and prepare to go home.

Walked outside the door, looked at the thin figure who was busy through the glass door, sighed, and then turned to leave.

......

At 9 p.m., 20-2, Building 18, Qingdu County Community.

"Click" opened the door, Shi Lei didn't have time to change his shoes, and a little girl of three or four years old hit him on his leg.

"Daddy, Daddy! You're back! The little girl asked in a childish voice, hugging his thighs tightly.

"Aang... My baby, did you miss your dad today? ”

As soon as he picked up the little girl under him, kicked off the shoes on his feet, and changed them into slippers, he rubbed his head against the little girl's face as he walked inside, causing the little girl in his arms to giggle.

"Giggle~~"

The little girl's silver bell-like laughter echoed in the room, and it also blew away a trace of depression that had been enveloping the room.

"You're back? Have you eaten? ”

Out of the bedroom came a woman in her thirties, with messy hair, a pale face, and a very haggard look.

"No, I'll warm up something and eat it myself in a while, you don't have to worry about me."

"Mom?"

"It's too late, I'll let my mom go back first."

"You've worked hard."

As Shi Lei spoke, his eyes looked at his wife in front of him with concern, his eyes flashing. A smile pulled at the corners of his mouth, and he stepped forward, hugged his wife with his other hand, which was not holding the child, and held her in his arms.

One second, two seconds, three seconds.

No one spoke, and just like that, the two couples quietly enjoyed each other's embrace and warmth.

"Giggle~" The daughter in her arms seemed to be very curious about her parents' relationship like this, she flashed her big eyes and looked between her parents curiously.

One moment at Mom, the next at Dad.

Finally, as if she had figured out something, she pursed her lips and kissed her parents alone, and then followed the example of her parents, rubbing her body upwards and pressing her forehead against her mother's neck.

A pair of warm hands passed behind her and caressed her little head, very gentle.

After a long time, his wife raised her head, looked into his eyes, and said, "Go and eat something, it's too late, remember to eat when you're late outside in the future, don't worry me." ”

"Okay, listen to you."

Although Shi Lei promised this, he did not go to the kitchen immediately, but turned around and went to the bedroom.

Under the warm yellow light, a small baby is sleeping soundly in the crib next to him.

Walking slowly to the crib, Shi Lei approached and looked at the sleeping child stupidly, but he didn't dare to reach forward and touch it, for fear that his rough palm would cut through the baby's delicate skin.

A pair of hands gently put on his shoulders, and his wife leaned over to him and whispered, "The child has just fallen asleep, and he won't wake up for a while, so go and eat." ”

......

Sitting at the dining table, Shi Lei ate the meal that his wife specially left for him, but he couldn't swallow it.

On the other side, there is a still innocent daughter, and his wife is playing games with her.

It was supposed to be a happy scene to enjoy parent-child time, but the husband and wife present were a little absent-minded.

"That's... I watched the news today..."

The wife's voice is a little soft, and if you don't pay attention, you may be swept away by the daughter's playful laughter.

"What does the news say?"

Shi Lei has always been a person with a fine heart, he asked back.

"I've heard that the state has approved the listing of new drugs for SMA, maybe... There will also be medicine in the country..."

"New drugs? Zolgensma？ Or Spinraza? ”

"I heard that all of them are available, and the second-generation drugs have been approved."

As she spoke, the wife became a little excited, and some of the daughters who were playing at the table were disturbed by their mother's actions, and stopped and did not dare to move, for fear that they were talking about themselves.

"Silently, you go over there to play, Dad and Mom talk about something." Reaching out to touch his daughter's forehead, Shi Lei lowered his head and coaxed his daughter softly.

"Good!" Momo has always been a very well-behaved child, listened to his father's words, jumped off the chair and went to his own exclusive game area to play.

Here, Shi Lei concentrated on talking to his wife.

The more he talked about his wife, the more excited she became, and the redder her eyes became.

Shi Lei, who felt sorry for his wife, took his wife into his arms again, and then he understood a little in his heart why his wife was so haggard today.

They originally had a happy family.

The two have been in love since they were students, and after graduation, they got married quickly and gave birth to a daughter silently. After seven years of marriage, a happy marriage, and a successful career, they are fairy partners in the eyes of others.

All the misfortunes came too suddenly, they were full of joy to welcome the arrival of Erbao, prepared a lot for the child, and the arrival of the child did bring happiness to the whole family, but this happiness was too short-lived, as short as only two months.

During the confinement, the mother-in-law found that the child was not very good at lifting legs, so when she was 45 days old, she was taken for a child care check-up, and was told by the doctor that the child had a rare genetic disease, spinal muscular atrophy (SMA).

What about spinal muscular atrophy? A disease similar to Stephen Hawking's ALS.

Spinal muscular atrophy, or SMA for short, is an autosomal recessive neurodegenerative disease caused by mutations/deletions in both copies of the SMN1 gene in the human body. The loss of SMN1, a gene critical for the survival of motor neurons, leads to the gradual degeneration of the nerves that control muscles, muscle atrophy, and eventually, most of them die due to respiratory muscle failure. Many babies with SMA may look like normal children within a few weeks or months of life, but their nerves and muscles deteriorate quickly, and most children do not live to be 2 years old.

According to statistics, one in every 8,000 babies and young children born with this disease, and one in every 50 people is a carrier of the mutated gene. If both spouses are carriers, there is a 1/4 chance of giving birth to a child with SMA.

Unfortunately, their youngest son is a child with SMA, and the more severe type II child may not live to be 10 years old if he does not receive good medical treatment.

And currently, there are only two drugs that can treat this disease.

One is Novartis' single-use treatment Zolgensma, priced at $2.125 million, equivalent to more than 14.6 million yuan.

Another pharmaceutical company, Biogen's Spinraza drug, unlike Novartis, is a lifelong treatment that costs $750,000 for the first year and $375,000 per year thereafter.

This is undoubtedly not an astronomical amount for a middle-class family like Shi Lei and his wife.