Sharing the latest news, an unexpected journey
Since April, the dizziness has been basically good. In the last 20 days, I am trying to recover and adapt to the body.
It's a long story.
For a long time, when I thought it was "epilepsy" and took phenytoin, I knew that this disease was very taboo and suddenly stopped taking medicine. If you forget to take your medicine one day, the seizure will worsen. The same goes for PKD. If you insist on taking the drug for several years, the dosage can be gradually reduced, and the drug will be gradually stopped for more than ten days to observe the reaction.
I had planned to stick with it for two years, never forget to take the medicine, and see if I could succeed after two years of trying to stop the medicine.
But something unexpected happened.
After learning that I had PKD last month, there was a significant "good thing", which I had said before, that is, the amount of medication I took was greatly reduced. From 100mg of phenytoin twice a day to 50mg once a day (with small scissors, cut 200mg of carbamazepine into quarters), it was completely fine.
But even this small 50mg will still cause a slightly obvious feeling of drowsiness, and it seems that the brain will be a little less bright. After observing the reaction for more than ten days, I finally gradually reduced the medication, and took one-sixth tablet and one-eighth tablet for many days, still using scissors.
The so-called one-sixth or one-eighth is not necessarily precise, and the shape of the cut is not very regular, but in general it keeps the trend of less and less, so that although there is occasional discomfort, the disease seems to be under control.
My original intention was to find the "extreme" that could barely control the disease and minimize the side effects.
But something happened some time ago.
At the beginning of this month, when I was thinking about resuming the update, I was very excited one afternoon when I was thinking about the idea and scribbling on scratch paper, and I forgot to take my medication that day.
Originally, the time of taking carbamazepine was changed to dinner, which was different from before, and it was okay to remember it every day, but once I forgot the first day, I forgot it "naturally" the next day.
By the time I came to my senses, I had forgotten to take my medicine for three days.
Strangely, however, the symptoms did not worsen.
It turned out that in order to avoid the side effects of taking the drug and gradually reduce the drug, it was inadvertently made a successful attempt to stop the drug. In this way, it seems that it will not take two years to be able to stop the drug by mistake.
It has been more than half a month since I completely stopped taking the drug, and everything is fine. Even if there is occasional discomfort, it can basically control it autonomously.
The reason for this is that the drug is gradually stopped rather than abruptly. In the past, I forgot to take the medicine, and I used to take 200mg the day before, and I suddenly stopped it the next day, which naturally caused it to be heavy, but this time the process of unintentionally limiting the limit coincided with the original method of stopping the drug, which was equivalent to making a normal attempt to stop the drug;
Second, after learning that I had PKD and not epilepsy, every time I encountered a seizure, my mental pressure was much less, and my subconscious self-control was greatly strengthened. Through some inducement actions that you have figured out, you can "appease" yourself more powerfully.
Of course, the process of habituation and adjustment is inevitable.
After not taking the medicine, small signs of seizures (controllable) will become very frequent, which requires me to get up, move, suddenly the phone rings to answer, others shout, stand after eating, and even get up in the morning, sit on the chair and occasionally stretch the arch of the foot, and so on, I need to gradually adjust and adapt.
Let yourself be consciously in control of your body.
Recently, it has been getting better and better.
Integrate mental relaxation and avoidance of sudden movements into the subconscious, and gradually train a "normal" mode of taking off the drug.
If you need to go out and do something, then be flexible and take a little more medicine to make sure you can.
At the moment, victory is in sight.
This experience has made me feel a lot.
Generally speaking, in the past two months, the so-called "epilepsy" has not only been subverted, but even about to be completely resolved, which seems to be a great joy; if I had been told in advance half a year ago that my "epilepsy" was about to be cured, I would definitely be ecstatic;
The nightmare of "long-term drowsiness" caused by taking medication for a long time, and the fear of not being able to code words and think well again has not become a reality after all.
But the update has been interrupted for nearly two months, and it is really not what I wanted, and I have finally been haunted, and there are many things in my life that are not satisfactory.
In many cases, the "pain of the skin" seems to be less important than the long-term gains and losses, but it is difficult to say when it comes to the experience of each individual. It will inevitably be a pity and a sad one.
It stands to reason that after 7 days of taking the drug, I was almost sure that I would be fine, but this time I did not make a reluctant comeback, so as not to have another accident, and until today, I am sure that I am indeed "successful", and I can finally plan to return.
Nearly two months, it passed quickly.